49er wrote:Den,
As one who has alot of respect for you, I am not sure I understand why someone as smart as you seems to have a hard time understanding that everyone perceives things differently. As someone who recently started wearing hearing aids, once the audiologist found me a pair that was easy to maintain, I didn't see these as a big deal. Well ok, I am a little self conscious when the low battery warning goes off in public but that doesn't last too long.
I think if I had adapted to pap therapy initially, I would definitely have positive feelings. And during the rare times it worked, I absolutely loved it. But now I hate it because no matter what I do, my shelf life on the machine is 3 hours and not one minute more.
Last night, a bleeping breathing event seemed to have preceded my wake up even though my AHI was zero. This has happened frequently in the past. And I woke up with a completely dry and stuffed up nose that doesn't respond to any remedy or various humidity levels. So I am going to try one more thing tonight by wearing the Simplus mask and raise the pressure to accomodate the huge increase in the AHI it causes. Unfortunately, when I put it on to go back to sleep due to the elan being completely intolerable last night, another breathing event seemed to have proceeded a wakeup.
I wish to god I could throw the machine out the window as I hate it. Sorry to offend you as I didn't start off feeling that way. But when I feel everything I have tried keeps resulting in failure, it is hard not to be very frustrated.
Unfortunately, until I come up with an alternative, not using the machine is not an option as I discovered when my HR and BP go up.
49er
Not at all! When I first got my diagnosis, I sort of had a little panicky feeling. I researched things like the pillar procedure and others. But, the more I read about this therapy, I realized how simple it COULD be. SO, I put my mind in a mode that embraced the therapy instead of fighting it. You know........"it's mind over matter". I'm a "glass half full" sort of person.
I'm just trying to get people to put things into perspective and realize this therapy isn't as bad as they try to make it out to be. Get off your "pity-pot".
I've known people with most if not all of the situations I listed. Some I didn't list to keep it shorter.
I'm not in a wheelchair (I worked with a person who was paralyzed from the waist down, due to a car wreck that was someone else's fault).
I don't have to use oxygen 24/7/365, but I've know a number of people who do or have (I saw a little old man in the Walmart pharmacy the other day who was carrying his little portable oxygen pack around).
My wife had breast cancer surgery (lumpectomy) in 2010 and I was very supportive with her situation......then, due to some medications they put her on, she got a blood clot in her left thigh. Now she has to wear compression stockings......forever.
I could go on and on with examples from that list, but I hate to write posts that are too lengthy.
I feel grateful that my therapy is fairly simple (no Centrals or bi-level needs). I'm lucky to have a wife who understands that I need to use this therapy and has been supportive as I acquired more equipment. I was spiraling downward for a few years into a "mess". I didn't know what was wrong and after I found out, I was thrilled that I found out what it was and how simple the therapy was. I also think the "difficult" relationship I had with my sleep doctor helped me become more determined to make it work despite the prescription I was given for a much higher pressure.
The bottom line is........don't assume that I don't understand or can't relate. I definitely can and do. It's just that people need to put things into perspective. It COULD be alot worse.......because some people have "worse".
< Stepping off soapbox >
Den
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(5) REMstar Autos w/C-Flex & (6) REMstar Pro 2 CPAPs w/C-Flex - Pressure Setting = 14 cm.
"Passover" Humidification - ResMed Ultra Mirage FF - Encore Pro w/Card Reader & MyEncore software - Chiroflow pillow
User since 05/14/05