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Especially for newly diagnosed - Dealing with Change

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Expand view Topic review: Especially for newly diagnosed - Dealing with Change

Re: Especially for newly diagnosed - Dealing with Change

Post by Suzannaor on Sat May 18, 2013 2:26 pm

Thank you for this well written article. I have copied it to save in my C-PAP folder. I am newly diagnosed and still haven't reach the acceptance stage. Glad to know there is hope.

Very interesting points you have mentioned , appreciate it

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Re: Especially for newly diagnosed - Dealing with Change

Post by idamtnboy on Mon Apr 22, 2013 2:11 pm

slickwil wrote:I finally got a call from my sleep center to come and get my machine this Friday. Does anybody have any suggestions on what
questions I should ask them?

Please create a new posting in the discussion forums for your question. You will receive more attention there. This topic has very limited participation and we are trying to keep it free of general discussions about CPAP issues to keep it from becoming bloated. Thank you.

Re: Especially for newly diagnosed - Dealing with Change

Post by slickwil on Mon Apr 22, 2013 1:50 pm

I finally got a call from my sleep center to come and get my machine this Friday. Does anybody have any suggestions on what
questions I should ask them? I had my sleep test a couple of months ago and have been waiting since then to get this started. I was told my ahi was 68.2. I am really hoping the cpap helps me.

Thanks

Re: Especially for newly diagnosed - Dealing with Change

Post by idamtnboy on Fri Apr 19, 2013 5:49 pm

back2collegemama wrote:Hello, I am a new user and I wanted to read your article about coping with change but I cannot access it. Could you please help me? Thank you

It's fixed now. I sent you a link in a private message, and the link that was broken now works.

Re: Especially for newly diagnosed - Dealing with Change

Post by idamtnboy on Fri Apr 19, 2013 5:43 pm

idamtnboy wrote:
idamtnboy wrote:
back2collegemama wrote:Hello, I am a new user and I wanted to read your article about coping with change but I cannot access it. Could you please help me? Thank you

There seems to be a problem with the CableOne server. I'll check into it later today when I have time. Thanks.

It looks like CableOne has discontinued their personal web pages, without notice to users to boot! :x

I'll have to figure what to do about file hosting and then will update the links when I get it hosted again.

The file has been relocated to another server and the link has been updated.

Re: Especially for newly diagnosed - Dealing with Change

Post by idamtnboy on Thu Apr 18, 2013 10:11 pm

idamtnboy wrote:
back2collegemama wrote:Hello, I am a new user and I wanted to read your article about coping with change but I cannot access it. Could you please help me? Thank you

There seems to be a problem with the CableOne server. I'll check into it later today when I have time. Thanks.

It looks like CableOne has discontinued their personal web pages, without notice to users to boot! :x

I'll have to figure what to do about file hosting and then will update the links when I get it hosted again.

Re: Especially for newly diagnosed - Dealing with Change

Post by idamtnboy on Thu Apr 18, 2013 8:05 am

back2collegemama wrote:Hello, I am a new user and I wanted to read your article about coping with change but I cannot access it. Could you please help me? Thank you

There seems to be a problem with the CableOne server. I'll check into it later today when I have time. Thanks.

Re: Especially for newly diagnosed - Dealing with Change

Post by back2collegemama on Thu Apr 18, 2013 12:52 am

Hello, I am a new user and I wanted to read your article about coping with change but I cannot access it. Could you please help me? Thank you

Re: Especially for newly diagnosed - Dealing with Change

Post by OceanloverOH on Sat Apr 13, 2013 7:47 pm

Hi, everyone. I just had a sleep study last night (what an experience....I have facial claustrophobia and have trouble tolerating a mask). I managed it, though. Mouthbreather so had to go with a full-face mask. The respiratory sleep tech told me I absolutely have severe sleep apnea, and she'd leave it to the doc to discuss the rest early next week. I'm so anxious about this.....I'm gonna hang out here and hopefully benefit from the experience of real folks like you. TIA.

Ocean

Re: Especially for newly diagnosed - Dealing with Change

Post by ringo728 on Fri Apr 05, 2013 8:10 pm

Thanks I needed to read this especially tonight. It's been a tough adjustment but through the grace of God I will get through it.

Re: Especially for newly diagnosed - Dealing with Change

Post by kaiasgram on Fri Mar 29, 2013 2:03 pm

Preacher29 wrote:Greetings. I am a newly diagnosed sleep apnea patient, and I found this thread very helpful indeed. Having a little trouble with acclimating to the CPAP (at least I don't take it off in my sleep like some people do) but I think I am starting to get used to it. Mostly I sometimes have difficulty breathing when sleeping on my back, and I am not sure if I am "mouth breathing" sometimes or not. I do seem to be going through a fair amount of water in the humidifier. My wife said that I was for a while but I have tried various means of stopping that. Not sure how well it is working.

I wonder if I might need a full face mask but I am told that those don't do as well and my respiratory therapist doesn't really want to do that.


Welcome Preacher,

Please come introduce yourself down in the "Topics" section of the forum (start a new thread), where people are more likely to spot your post. If you also list your machine and mask as you see in most of our signature boxes, you'll get lots of help from the experienced cpap users on the forum.

Re: Especially for newly diagnosed - Dealing with Change

Post by SleepWellCPAP on Tue Mar 26, 2013 5:50 pm

Hello All!

Excellent posts concerning the acclimation period that unfortunately comes with adapting to CPAP usage. The upside is that you all have some very important health benefits and increased energy to look forward to, as long as we can over any difficulties.

Regarding the last post about what equipment, mask, etc etc. In most cases, your initial mask is determined at your titration study. Fisher and Paykel, by the way generally makes masks appropriate for higher pressures due to the foam insert. The machine however, can be determined by quite a few factors. The doctor's preference of brand and model, makes a big difference in what your equipment provider will offer you and what equipment actually worked during your study. Did CPAP work, or did you need bipap or vpap?

I'll be happy to offer some suggestions. I'll need to know a little more information. What is your pressure? Do you need full face mask? How did the your sleep studies go? Were you able to sleep during your titration? Did you get dried out? Did they, by chance, tell you what your apnea hypopnea index (AHI) was?

Jim

Re: Especially for newly diagnosed - Dealing with Change

Post by daisy99 on Mon Mar 25, 2013 4:53 pm

How do I know which cpap machine I should buy, which provider to use, which mask to ask for, it is all very confusing. Then the insurance must be considered. I really do not know where to start. The doctor recommended a type I never heard of (Fisher&Paykel), the only place in Dallas or Ft Worth, if you can believe is 56 miles from my house -- entirely too far.

Re: Especially for newly diagnosed - Dealing with Change

Post by justmissjulie on Sat Mar 16, 2013 8:03 pm

This is my very first post on a forum of any kind.

I shot through those four stages -- shock, denial, depression, acceptance -- in no time at all. I was truly EXCITED by the prospect of getting my own machine and experiencing wakefulness for the first time in what appears to be many years. I believe I have been given a new lease on life -- only good things can come from strapping that mask to my face every night. With an AHI of over 50, I can only assume that death wasn't too far around the corner for me.

Last night was my second night and I kept the mask on all night. It's nearly 7pm and I'm still wide awake even after watching a few television shows -- I can't believe it!! Sure, I haven't gone for a walk or started to jog down the street; but, that's coming, my Friends, that is definitely coming.

I will thank God for my new sleep buddy for the rest of my now potentially long life.

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